Update #3

We now have a little minuscule sliver of a look into the nightmare that it is having to deal with insurance companies, referrals, laboratories and doctors offices. It sucks and I know that we haven't even had to deal with much compared to other people.

First off we have had to deal with the fact that there is only one specialty clinic in town and that clinic is in "the other hospital's" building and is associated with them so we are now trying to get out of paying a so called "facility use fee." It's either pay it, get our insurance to pay it or drive all the way to California. I'm hoping the insurance company just pays it otherwise I'm sure we will just pay it and suck it up. The only problem is when and if we have to go for follow up appointments. I don't mean to sound greedy or that we can't afford it but it just isn't right to do that to people.

The other issue recently has been that they told Larry three times that we would be seeing the doctor that Dr. Althoff recommended and referred us to. Then I get a phone call yesterday saying that their books were wrong and we will actually be seeing Dr. Torkelson. The office staff talked him up and promised that his patients love him...we'll see I guess. I'm sure he is a very good doctor and that what is going on with Jack is small beans compared to what they see everyday. But I'm a Mama Bear and the claws have come out! I just want the best of the best for my little man.