Final Von Willebrand Post (we hope)

Yesterday we had our final appointment at the hematologist (besides a yearly check-up the doctor wants us to do). The doctor informed us that Larry and my labs were normal and that means that Jackson had a genetic mutation that caused his vWB. The doctor said that this accounts for about 1/3 to 1/2 of all newly diagnosed vWB patients. We were very happy to hear this not just for us but also for Addie. The doctor said that we would not even test her unless she showed symptoms. We also found out at this appointment that Jackson responded beautifully to the DDAVP test. His vWB factor, which was less than 10% of normal at the start, went up 10 fold which was amazing since they only wanted it to increase 4 fold. So now we know that this medication works for him in case of an accident or surgical procedure. The doctor said that this medication will keep his levels stay up for 24-48 hours but if we needed to keep his levels up longer for any reason there are other options such as blood products and even an oral medication that will keep his factor 8 up. These will help him keep the clots that he has made from breaking down until he heals fully. In the end the doctor said that we are to treat him normally and just contact them in the case of an accident, surgery or tooth extraction. Otherwise we will check in with them in a year! We are so happy that this is the "end" of this adventure for us and that Jackson is a happy, healthy little boy. On to the next adventure...